{"id":8931,"date":"2025-12-03T08:00:00","date_gmt":"2025-12-03T09:00:00","guid":{"rendered":"http:\/\/curiousdrive.com\/?p=8931"},"modified":"2025-12-03T21:33:31","modified_gmt":"2025-12-03T21:33:31","slug":"it-took-over-10-years-for-me-to-call-myself-disabled","status":"publish","type":"post","link":"http:\/\/curiousdrive.com\/index.php\/2025\/12\/03\/it-took-over-10-years-for-me-to-call-myself-disabled\/","title":{"rendered":"It took over 10 years for me to call myself disabled"},"content":{"rendered":"
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\n\t\t\"Hannah\t<\/div>
For more than a decade, I never used the word \u2018disabled\u2019 about myself (Picture: Hannah Shewan Stevens)<\/figcaption><\/figure>\n

\u2018Why are you using that<\/em>?\u2019 A stranger said, pointing to my cane. <\/p>\n

\u2018I\u2019m disabled<\/a> and sometimes need mobility support,\u2019 I replied. <\/p>\n

That should have been the end of the conversation, instead, they scoffed, gave me a disgusted look and walked away. That told me everything I needed to know about their opinion<\/a> of disabled people.<\/p>\n

When such vitriol towards disabled people exists, it\u2019s easy to see why it\u2019s so hard for some people to accept the label \u2013 I know I certainly did.<\/p>\n

For more than a decade, I never used the word \u2018disabled\u2019 about myself. I was ashamed of it, I feared<\/em> it even.<\/p>\n

But now, at 31, I finally feel genuine pride in my identity \u2013 in fact, it\u2019s a defining part of who I am as a person \u2013 and I want others to feel the same.<\/p>\n

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\n\t\t\"Hannah\t<\/div>
I wasn\u2019t always disabled: for the first 14 years of my life I felt like a normal(ish) kid (Picture: Hannah Shewan Stevens)<\/figcaption><\/figure>\n

I wasn\u2019t always disabled: for the first 14 years of my life I felt like a normal(ish) kid. <\/strong>I had a few minor health issues but nothing serious. <\/p>\n

Then, in summer<\/a> 2008, I contracted sepsis following a severe throat infection which, over the next few years, would lead to me developing numerous disabling chronic illnesses including: chronic pain conditions such as fibromyalgia<\/a> and complex regional pain syndrome, joint hypermobility syndrome, and an autoimmune condition called localised scleroderma. <\/p>\n

All this, I later learned, meant I technically qualified as disabled, but I never thought of myself that way.<\/p>\n

I remember having this preconceived idea of what being disabled looked like: either you were a wheelchair user or someone who was hard of hearing and that was it. There was no in-between, no grey area.<\/p>\n

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\n\t\t\"Hannah\t<\/div>
There was also a part of me that didn\u2019t feel like I was disabled enough to use the term (Picture: Hannah Shewan Stevens)<\/figcaption><\/figure>\n

This belief wasn\u2019t helped by the fact that, whenever I discussed my symptoms, everyone would tell me I was \u2018sick, not<\/em> disabled\u2019 \u2013 as if being the latter was the worst thing anyone could possibly be.<\/p>\n

Some went even further, saying they would \u2018rather die\u2019 than live my life and so I often found myself downplaying my symptoms to appear \u2018normal\u2019.<\/p>\n

There was also a part of me that didn\u2019t feel like I was disabled enough to use the term. I worried that I would somehow steal attention away from someone more \u2018worthy\u2019.<\/p>\n

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\n\t\t\"(Picture:\t<\/div>
Everyone would tell me I was \u2018sick, not<\/em> disabled\u2019 \u2013 as if being the latter was the worst thing (Picture: Hannah Shewan Stevens)<\/figcaption><\/figure>\n

Nothing makes you more comfortable claiming an identity than facing the discrimination attached to it, though.<\/p>\n

It was when trying to prove that I\u2019m not \u2018just an overly sensitive woman\u2019 \u2013 yes, that\u2019s a direct quote from a doctor \u2013 while fighting for basic medical care that my attitude around the word started to change. <\/p>\n

I knew I should be receiving help and support but was being let down repeatedly \u2013 as many disabled people are. <\/p>\n

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\n\t\t\"Hannah\t<\/div>
Since accepting this as part of my identity, I have immersed myself wholeheartedly in the disabled community (Picture: Hannah Shewan Stevens)<\/figcaption><\/figure>\n

But I also hoped that by embracing the word, I might be able to better explain my lived experience and improve my access to the world. <\/p>\n

This didn\u2019t stop the inequality overnight, of course \u2013 at work, for example, one ex-employer questioned whether I was \u2018really<\/em> disabled\u2019 and took their time installing reasonable adjustments, such as a standing desk and flexible hours, despite my obvious need for them \u2013 but it has made me more confident in speaking up about such treatment.<\/p>\n

In fact, since accepting this as part of my identity, I have immersed myself wholeheartedly in the disabled community to try and fight for our rights because the reality is disabled people still don\u2019t have equality<\/a>.<\/p>\n

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\n\t\t\"Hannah\t<\/div>
I will always celebrate being part of a one-billion strong global community that champions each other (Picture: Hannah Shewan Stevens)<\/figcaption><\/figure>\n

An estimated one in four adults in the UK has a disability, but it\u2019s my opinion that we are still used as scapegoats. We are portrayed by both the media and government as economic burdens and as a result we face higher rates of poverty, unemployment, and educational disparities.<\/p>\n

Legally, we are supposed to have protections for these things, but society has only grown more hostile towards us. In the year to March 2024 there were more than 10,000 incidents of hate crime against disabled people recorded in England<\/a> and Wales, yet only 1% were convicted of violent offences. <\/p>\n

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\n\t\t\t\tInternational Day for Persons with Disabilities\t\t\t<\/h2>\n
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