Tesco makes major change in stores as shoppers ask ‘what’s the point exactly?’

Tesco sign against blue sky
Shoppers are unsure about the new measures (Picture: Nathan Stirk/Getty Images)

Shoplifting is on the rise, with the last figures from the Office of National Statistics (ONS) revealing that offences in England and Wales have reached their highest since records began.

And now Tesco is taking a stand against thieves, introducing a new deterrent to stop any five-finger discounts.

A clip uploaded to TikTok by one Tesco shopper showed shelves featuring plastic covers, which need to be slid to the side to access items.

Filming in the confectionary aisle, content creator @kirkpap1 showed how the plastic screens had to moved in in order to access the Cadbury chocolate sitting behind it.

The idea is that criminals will be unable to subtly steal items when having to go through this extra step to get products off the shelves.

@kirkpap1

Tescos New Security Devices Will It Work ? #Fyp #Foryourpage #Tesco #Security @Tesco

♬ original sound – kirk

However, after the clip was posted online, the the extra security proved divisive.

Commenters on the video complained that those who wanted to steal will do so regardless of the new measures.

User @matt_an91 wrote: ‘Tesco just making it more frustrating for genuine shoppers to purchase items. A shoplifter will just snap that cover straight off, they don’t care.’

And @b25jmd2 queried: ‘What’s the point in this exactly? Because that isn’t stopping people from stealing.’

Plus, shoppers with mobility restrictions or impairments said they would struggle to do their shopping with these devices in place.

@geniesdream noted: ‘I’m disabled, and that would make shopping impossible, glad I don’t go to Tesco.’

However, many defended the new protocol.

Tesco chocolate shelf with woman sliding plastic front
A plastic front is placed on the shelf that has to be moved side to side to get your item (Picture: TikTok/@kirkpap1)

@gyoung2001 said: ‘They definitely work as someone who had these in their store. It takes the thieves longer to get to everything, so they might steal 10 bars instead of 30, and if they do go for more, it gives security time.’

While @manuparker8 said, it would help stop thieves from ‘swiping the whole shelf into a trolley’ during their stealing spree.’

Tesco have introduced sliding security devices on a limited number of shelves as an additional security measure to help reduce theft.

It’s not a universal policy though, so will only be popping in stores where the measure is deemed necessary.

The plastic screens are just one of many precautions shops are taking against criminals.

Tesco supermarket aisle
Shoplifting is on the rise in the UK (Picture: Alex Segre/UCG/Universal Images Group via Getty Images)

For example, Poundland’s ‘Against Retail Crime’ initiative saw the budget retailer introduce headsets and bodycams for staff working in stores with the most significant crime issues.

And, in some Primark branches, staff working at the tills have started to seal the paper carrier bags with blue stickers that say ‘sold’ to stop shoplifters in their tracks. 

But it wasn’t all about the debate. Some chose to make light of the situation, with @thisisntdaxter joking, ‘I gotta complete a Tomb Raider puzzle to buy a pack of fruit pastilles.’

@gaspolice23 joined in, writing: ‘Next we will be playing kerplunk for apples.’

How bad is shoplifting in the UK and what is being done about it?

Tesco’s changes come as shoplifting in England and Wales surges to an all-time high, with nearly half a million cases reported last year.

It was reported in January that a total of 492,914 shoplifting offences were logged by police in the year to September 2024, up 23% from 402,220 in the previous year.

Shoplifting levels had already reached a 20-year high last year, with the latest figures showing the crime continues to be on the rise and warnings that shoplifting is ‘spiralling out of control’ came after a survey by the British Retail Consortium (BRC) suggested there were more than 2,000 incidents a day, with staff facing assault, being threatened with weapons, and racial and sexual abuse.

In response to rising shoplifting cases, Lidl announced last year it had spent £2 on bodycam equipment for staff, becoming the the first supermarket in England to do so. 

And in October, John Lewis, the Co-op, M&S, Boots and Primark pledged more than £840,000 to kickstart the Pegasus initiative, which aims to improve how retailers report crimes like shoplifting to the police.

Do you have a story to share?

Get in touch by emailing MetroLifestyleTeam@Metro.co.uk.

Dunelm Helsinki lounge chair on a blue-tinted image of a garden.
Dunelm’s viral £35 garden loungers are ‘so comfy’ you’ll never want to get up (Picture: Metro/Getty/Dunelm)

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Sun-seekers, it’s official: the weather is slowly getting warmer, and if you have any outdoor space – whether that’s a balcony, patio or (if you’re really lucky) a garden, we’ve got just the thing you need.

Designed to ensure you soak up every ounce of sun we’re given, Dunelm’s Helsinki Loungers are the ideal choice for kicking back when the weather creeps above 15 degrees – and they’re affordable too.

A best-seller for very good reason, the reclining loungers, which have been described by impressed shoppers as ‘so comfy’, come in at just £35 for one or £69 for two – more than rivalling the cost of renting a Hyde Park lounger for the *three-to-four* sunny days we get a year.

Dunelm Set of 2 Helsinki Loungers

Designed with total comfort in mind, the Helsinki Loungers feature adjustable backrests to help you achieve the perfect level of reclining, supporting your legs and feet as you descend into total relaxation.

shop £69

Dunelm Helsinki Lounger

Grab just one of these top-selling Dunelm loungers for just £35.

shop £35

Whether you’re a balcony reader or garden sleeper, the Helsinki chairs make kicking back in the sun not just effortless, but pretty stylish, too, thanks to their array of colours.

From Coral and Ashley Blue to Aqua and Charcoal, the loungers bring a gorgeous pop of colour to any outdoor space whichever hue you opt for. But that’s not the main reason they’re so coveted by buyers.

Designed with ultimate comfort in mind, the Helsinki Lounger features an adjustable backrest to help you achieve the perfect level of reclining, supporting your legs and feet as you descend into total relaxation.

It’s also got a sleek headrest to support you whether you’re sitting back to read a book or sinking into an afternoon nap.

The loungers boast a sleek headrest to support you whether you’re sitting back to read a book or sinking into an afternoon nap (Picture: Dunelm)

Made using durable materials designed to withstand whatever outdoor conditions are thrown at it, this hardy lounger promises longevity without compromising on style or comfort.

And when you’re done pretending to be warm outside? The Helsinki chair easily folds flat for simple and space-saving storage – whether you keep it under the sofa or in the cupboard.

Dunelm shoppers can’t get enough of the chairs either, with over 340 scoring them a full five out of five stars and calling them ‘amazing quality’ and ‘perfect for summer’.

‘Just what I was looking for.’ Raved one five-star reviewer. ‘Comfy to sit in, easy to recline to any position. Fold away neatly and easily. Added bonus, great colour to match the patio and shed doors. Perfect!’

Made using durable materials designed to withstand whatever outdoor conditions are thrown at it, this lounger promises longevity without compromising on style or comfort (Picture: Dunelm)

Another added: ‘Best garden chairs we’ve owned. They are so comfortable but also lightweight so we take them everywhere. Also a bargain, would recommend.’

‘These are so comfortable and I love the subtle green colour (lily pad I think it’s called?). I’ve been singing their praises since getting them!’ Wrote a third.

We can almost smell the Aperol Spritz…

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People say ‘this type of love doesn’t exist anymore’ after a romantic man shared a sweet gesture he has done for his wife who he has been together with for 60 years

New Titanium Pro Cookware Set by Our Place in someone's hands - possibly serving dinner
Celebrities like Oprah Winfrey have spoken about their love for the Always Pan from Our Place – and the new collection is also worth shouting about. (Picture: Our Place/Metro)

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Our Place first launched its iconic Always Pan back in 2019, before it made its way to the UK in 2021. Over the last six years the kitchenware brand has continued to expand across new kitchen gadgets. 

The brand tested the water last year when it launched its first ever Titanium Always Pan Pro, which sold out due to popular demand. So, it made sense for the label to expand the Titanium Pro Cookware collection even further.

Lo and behold, Our Place is launching a full five-piece Titanium Pro Cookware Collection in March, which will include the mini and large version of the Titanium Always Pan Pro, as well as a Mini Perfect Pot Pro, and Perfect Pot Pro. 

We predict the Titanium Pro Cookware collection will fly off the shelves, as it looks like the best creation from the label yet. 

The full set has been crafted from ultra durable, toxin-free titanium, which the brand has claimed is 300% harder than stainless steel and ultra durable. Our Place has even claimed the range guarantees lifetime durability, which we can believe. It is also free from any coating, is non-stick, and features 360-degree fully-sealed rims for extra durability.

Our Place’s designs have not only been innovatively created, but it has also been celebrity approved, as Gwyneth Paltrow is said to be a huge fan too. Now we may not be sold on her vaginal steaming, but clean and effective kitchenware we are on board with. 

New Titanium Pro Cookware Set by Our Place in someone's hands - possibly serving dinner
Serve up fresh meals in the gorgeous new titanium collection from Our Place. (Picture: Our Place/Metro)

The upcoming collection will include Titanium Always Pan Pro, Titanium Perfect Pot Pro, Titanium Mini Always Pan Pro, Titanium Mini Perfect Pot Pro and the Titanium Large Always Pan Pro, all of which are available in chrome, as well as chrome with contrast gold knobs and handles for an even more luxurious finish. 

The beauty of Our Place’s creations is how multifunctional they are. I have the original Always Pan, which I can fry, grill, saute, boil, steam and bake savoury and sweet treats in. So, if the new collection lives up to its predecessors, we expect sell out success.

Alongside the kitchenware, Our Place will also launch new utensils to help with rustling up your favourite feasts. The utensils will be made of metal and silicone, instead of wood like the other accompaniments, which are much more durable – and sleek. 

Speaking about the new drop, Our Place co-founder, Shiza Shahid, shared: “Our mission has always been to innovate with purpose, creating cookware that not only inspires confidence in the kitchen but also sets a new standard for health, performance, and durability.

‘This cookware is a celebration of progress: no toxins, no compromises, and no limits on what is possible in the kitchen. It also represents many years of hard work and development by our product and engineering teams. Home cooks deserve to have pro chef-quality cookware in their kitchens and that’s what we’re bringing.’

However, Our Place’s full Titanium range has limited availability, so you will want to shop quickly before the full set sells out.

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Kezia Kecibas - I dismissed my MS thinking I was just an exhausted new mum Picture: Eleanor Whibley
The first few symptoms seemed to come out of the blue (Picture: Eleanor Whibley)

I was lying on my side in a hospital bed when a consultant stood over me and asked: ‘Have you heard of MS?’  

I had indeed – my friend’s mum had it when we were in school.  Unfortunately, after her diagnosis, she’d become withdrawn and in a wheelchair within a year.

‘It’s not always fatal,’ the doctor added, ‘a nurse will come and explain more.’ With that, he turned and left. But the nurse didn’t actually come for three days. 

Fortunately, the girl lying in the bed next to me had overheard. She turned to me and smiled: ‘It’s not that bad, you’ll deal with it.’ 

This was May 2007 and I was still in my early 20s. I just kept thinking to myself that I couldn’t have a brain disease. I was a mum – I didn’t have time.  

The first few symptoms seemed to come out of the blue.  

Earlier that month, as part of our healthy mums’ fitness group, I signed up for an assault course. I was doing a 10 km run in July so I thought this would be good practice – and great fun, too. 

Kezia Kecibas - I dismissed my MS thinking I was just an exhausted new mum Picture: Eleanor Whibley
Over the next few days, I started getting blurred vision (Picture: Kezia Kecibas)

At one point, I crawled under a cargo net, then had to climb a wall. This is when things got weird. 

As I reached the top, I held on to the zip wire and I just froze. I couldn’t do it. 

I’d done this many times before so I didn’t know what the problem was. My best friend caught up and encouraged me, ‘go, go, what are you doing?’ Seeing that I had physically frozen to the spot, she added: ‘Hold on and I’ll push you down.’ 

I ended up finishing the race and didn’t think much of it. But over the next few days, I started getting blurred vision. 

At the time, I was studying a holistic therapies course at my local college and it was a lot of coursework so everyone agreed that, as a mum, I was probably just tired. At the same time, I was tripping over absolutely nothing and getting cuts and bruises from falling all through the house. 

Kezia Kecibas - I dismissed my MS thinking I was just an exhausted new mum Picture: Eleanor Whibley
The spinning continued and got so bad that it made me nauseous (Picture: Kezia Kecibas)

Within a fortnight, I decided to make an appointment to see the doctor. After explaining that I kept losing my balance, he checked my ears and decided to prescribe ear drops because he thought it could be an ear infection that was causing balance issues. 

As days passed, the falls became more frequent so I went back to the GP, but was told to give it time. I lay in bed, head pounding, and the room was spinning. 

On top of that, I couldn’t think about food and I struggled staying upright. It felt like a hangover from hell. Even water made me throw up. 

The spinning continued and got so bad that it made me nauseous. I ended up calling an emergency doctor, who prescribed anti-sickness tablets.  

On one particularly bad day, I put my toddler son, Theo in his pushchair and wobbled down the street clinging on tightly, heading towards the doctor’s office. I staggered in.  

‘I’m really not good,’ I told the GP, ‘I’m going to A&E.’ Once admitted, I slumped in the wheelchair, holding tightly onto the arms as if it would somehow stop the spinning.  

Kezia Kecibas - I dismissed my MS thinking I was just an exhausted new mum Picture: supplied
It felt like I had MS under control (Picture: Kezia Kecibas)

I had an MRI that took about 15 minutes but felt like hours. Immediately afterwards, I spotted a toilet, flung the cubicle door open, and was sick. 

Not long after this, the consultant suggested I might have multiple sclerosis (MS). I was shocked. I was a healthy person – how could this happen?  

Eventually, the MS nurse arrived with leaflets about medication. I just remember being told that the condition gets worse, there’s no cure, and they don’t know why it happens.  

In the meantime, I was put on a steroid drip, which started to work. The spinning stopped and everything felt like it was going to be fine; I could handle this. 

Thankfully, things settled down for a few years once I started medication. I had been plodding along doing weekly injections, but overall leading a happy life. It felt like I had MS under control. 

What is Multiple sclerosis (MS)?

Multiple sclerosis (MS) is a condition that affects the brain and spinal cord.

Some of the most common symptoms include fatigue, problems with your eyes or your vision, such as blurred vision or eye pain, numbness or a tingling feeling in different parts of the body, feeling off balance, dizzy or clumsy and muscle cramps, spasms and stiffness.

There is currently no cure for MS but there are treatments that can slow the progression of it and help ease symptoms.

They include steroid medicine to reduce swelling and help nerves work better, muscle relaxant medicine to help relieve muscle spasms, cramps or stiffness and medicine to treat pain, vision problems and other symptoms.

This continued – even when I had my daughter, Layla, in March 2012. After chatting with my neurologist, I came off my medications. 

But after childbirth, I had a relapse with my MS symptoms – as can often be the case. 

Once home from the hospital, my mum and stepdad came over to see the new baby. At the time, we were having work done on our house, so I tried to keep Theo entertained while making teas for the workmen, feeding guests and breastfeeding Layla. 

I was exhausted. As a result, my eyesight started blurring and I kept dropping things. 

I rang my neurology consultant and was told to stop breastfeeding. I was then initially put on oral steroids and began bottle feeding, but the medication didn’t seem to actually be doing anything. So after a few weeks, I underwent an infusion every 28 days. 

Kezia Kecibas - I dismissed my MS thinking I was just an exhausted new mum Picture: Eleanor Whibley
I came out to the world as having MS (Picture: Kezia Kecibas)

This worked beautifully, so I stayed on this treatment plan for over five years. Unfortunately, then it started wearing off. 

So I made YouTube videos of my daily struggles. I filmed myself in the aftermath of having a fall. I described how much of a struggle cooking and cleaning was and even did some on the way to physio and neurology appointments. 

Essentially, I came out to the world as having MS. 

In December 2018, my annual neurology check-up came around. I was tired, so I slumped into the chair in the specialist’s office as he told me the medication wasn’t working anymore. ’Sadly, there’s nothing else the NHS can do for you.’ 

Read Kezia's book

Kezia has written about her journey in her debut book Rose-Tinted: M.y S.tory, out now.

I was devastated and angry. Then a lifeline came along. 

Haematopoietic Stem Cell Transplantation (HSCT) was something I’d heard of to treat MS, but I found out that AIMS – the Autoimmune and Multiple Sclerosis charity – was giving a presentation just down the road so I decided to go along. 

Essentially – according to the MS Society – it ‘aims to ‘reset’ the immune system to stop it attacking the central nervous system’. I immediately knew I wanted to try it, but the cost was 45,000 Euros (around £38,000 at the time). 

So I started a JustGiving page and began fundraising. Complete strangers saw my social media videos and donated – it was incredible. I managed to raise over £28,000 so I was able to book the treatment in Moscow for July 2019.  

Kezia Kecibas - I dismissed my MS thinking I was just an exhausted new mum Picture: Eleanor Whibley
I’m now living my best life (Picture: Eleanor Whibley)

At the clinic, I went through several days of testing to make sure my body was strong enough to cope with chemotherapy. For the procedure, I had various tubes and lines inserted to harvest my stem cells and replaced with healthy ones. 

I was petrified and excited all at the same time.   

In the aftermath, my body felt so weak so I used a walker to move. As my immune system developed, I got stronger.   

After four weeks in Moscow, I headed home to the UK. Throughout it all, people were more supportive than I imagined. 

I’m now living my best life – with no injections or infusions. I sometimes get tired, but doesn’t everyone? I still work as a holistic therapist in my garden and love every minute. I have oxygen and physio every week and I try to eat good food. 

But most importantly, I’m staying positive, being my own advocate, and laughing often. 

At the end of the day, I want to tell people with MS that you should never be ashamed of disability.  

I don’t suffer from MS. I just happen to have it. There’s no guarantee that things won’t change, but I’m going to keep on smiling.  

Do you have a story you’d like to share? Get in touch by emailing jess.austin@metro.co.uk

Share your views in the comments below.

Prostate Cancer UK helps life long United fan Mark Farrington from Bolton after his recovery from prostate cancer , he can now get ???back in the game???. as Manchester United is the first Premier League club to achieve the gold BOG STANDARD,
I was constantly considering how much queuing there would be on the transport, outside the ground, at the toilet (Picture: Mark Waugh Manchester Press Photography Ltd)

‘I’m not quite ready.’ 

‘Maybe I’ll come to the next game.’ 

Just two of the excuses I made to avoid going to football matches with friends. 

I’ve been a Man Utd fan since I was a boy and always loved going down the road to watch my local team. 

But a few years ago, I couldn’t even think of going to a game – because, due to prostate cancer treatment, I was incontinent. 

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I was constantly considering how much queuing there would be on the transport, outside the ground, at the toilet. 

Then, there was the lack of sanitary bins for male incontinence products, which meant I was terrified to go anywhere for months.

Prostate cancer symptoms

In its early stages, prostate cancer is often symptomless, but over time, signs can include:

  • Frequent urination, especially at nighttime
  • Other changes in urination, including pain, weak flow, and blood in the urine.
  • Blood in semen
  • Pain in the hips, back and pelvis

I found out I had prostate cancer after breaking my shoulder in 2021. I was 54 at the time. 

My doctor mentioned it would be a good time to do a protein-specific antigen (PSA) blood test because of my age. I know now that I should have had it checked when I was younger as my dad had prostate cancer, but the doctors didn’t know this. A raised PSA level could indicate an issue with the prostate, including prostate cancer. 

The prostate is a small gland located below the bladder and in front of the rectum in men. Its main function is producing seminal fluid, but it also helps regulate urination.

Prostate Cancer UK helps life long United fan Mark Farrington from Bolton after his recovery from prostate cancer , he can now get ???back in the game???. as Manchester United is the first Premier League club to achieve the gold BOG STANDARD,
The surgery was successful, but the aftermath was the most difficult part (Picture: Mark Waugh Manchester Press Photography Ltd)

When the results came back with a high PSA level, I underwent further tests and it was a constant battle in my head between remaining positive and thinking I was going to die.  

And it was a massive shock to hear the words ‘I’m sorry, the results are positive; you have prostate cancer’. 

Luckily, the cancer had been caught early and I had treatment options: Radiotherapy or surgery to remove the prostate. I opted for surgery, because my cancer was contained in the prostate.

Having the prostate removed meant the chance of it spreading was really reduced, and it was a quicker process – in and out in a day. I had to recuperate at home, but it was less lengthy than 6-8 months of radiotherapy, which can make you feel very unwell.  

The surgery was successful, but the aftermath was the most difficult part. 

I became incontinent due to the surgery causing unavoidable damage to nerves and muscles that control urination. I had a catheter for a week, and when that was out, I was in unknown territory. 

I got incontinence pads, which need changing at least once or twice a day, and this became a big stress.  

Prostate Cancer UK helps life long United fan Mark Farrington from Bolton after his recovery from prostate cancer , he can now get ???back in the game???. as Manchester United is the first Premier League club to achieve the gold BOG STANDARD,
I got used to the safety of home (Picture: Mark Waugh Manchester Press Photography Ltd)

Imagine an open tap. Honestly, nothing can prepare you for the lack of control. I worried constantly: Will I leak? Will I be able to find anywhere to change my pad? 

For the first few months, I didn’t want to go out too far because the incontinence was so bad.  

I got used to the safety of home and, even when I felt like I could go out, I was very reluctant to do so in case of leaks. 

Luckily my wife owns a café about half a mile from our home, so when I did venture out after a month or so, it was only a short walk and I knew I would have somewhere to change.  

I slowly started to gain more confidence, going out for longer walks or even starting to go to a local bar for a drink. But even then it was like a military exercise. I had to estimate how long I was going to be out, how many pads I’d need, and whether there would be somewhere to change them. 

What is the prostate?

Only men have a prostate gland and it is usually the size and bears similar shape to a walnut. It does grow as you get older. The prostate sits under the bladder and surrounds the uretha – which is the tube that men urinate and ejaculate through.

The prostates job is to make semen which is the fluid that contains sperm.

Prostate cancers can develop when cells start to grow abnormally. Some men develop prostate cancer that is more likely to spread.

For more information about prostate cancer visit https://prostatecanceruk.org.

 

 

I would never go anywhere that I might have to wait in line or where I knew there wouldn’t be bins for my pads, which meant going to football was definitely out of the question.  

I had phone calls and messages from friends, with invites to games – but I couldn’t accept. Instead, I made excuses. 

I didn’t like lying, but when your head is down, it is hard to pull yourself up. Looking back you realise how easy it is to retreat into yourself. I wanted to stay in the safe place that was home. 

I was terrified of being stuck somewhere without being able to change my pad when I needed to. 

Imagine an open tap. Honestly, nothing can prepare you for the lack of control.

QuoteQuote

The overriding feeling was one of embarrassment for having to wear a pad and for having to carry my used pads around with me, due to a lack of bins.

When I eventually started being honest with them, my friends, rightfully, would say: ‘You have had major surgery to get rid of cancer, the incontinence is a byproduct of that and it won’t last forever’.   

Of course, they were right – and I knew that. But it remained difficult to get past the embarrassment of walking through a packed room with a used pad in my pocket, looking for somewhere to dispose of it. 

I used to have to take out doggy bags, fill them with my used pads, and pack them in my bag. It’s almost impossible not to feel self-conscious about that. 

Prostate Cancer UK helps life long United fan Mark Farrington from Bolton after his recovery from prostate cancer , he can now get ???back in the game???. as Manchester United is the first Premier League club to achieve the gold BOG STANDARD,
That’s why I wanted to share my story as part of the Prostate Cancer UK (Credits: Mark Waugh Manchester Press Photography Ltd)

And I was just one of the nearly 80% of people who feel anxious about leaving their homes because they don’t know if there will be somewhere to dispose of their incontinence pads.   

Having something as simple as purpose-built bins would have made such a difference for me and, I’m sure, many other men. I would have 100% gone to matches or watched games with my friends at the pub if I’d known there would be a bin.   

That’s why I wanted to share my story as part of the Prostate Cancer UK and phs Group’s Back in the Game campaign, which asks clubs to implement the BOG STANDARD and install male incontinence bins and pads in its toilets, as well as raise awareness of prostate cancer and incontinence, which I wholeheartedly support.  

As a Manchester United fan, it was a big deal for me to see the club becoming the first in the Premier League to do exactly this in November 2024.

I’ve been back to Old Trafford since the bins have been installed, and it just made me think of how many men who can get back in the game now. They can sit in the stands and concentrate on the game, because they know they’re covered. It would have made such a massive difference to me when I was struggling most.  

I really hope other clubs follow suit so that fans dealing with incontinence don’t miss out on match days – but we shouldn’t stop there. We need more incontinence bins in male toilets across the country. Restaurants, pubs, stadiums – everywhere.  

My incontinence is much better these days – I have control over my life again – and the Back in the Game campaign has given me more confidence to talk about the impact of prostate cancer.  

I may never be 100% dry again and I’ve accepted that. But it’s great to know that I can get back in the stands confident my club is looking after me – so I can, finally, get back to the game I love.

Do you have a story you’d like to share? Get in touch by emailing izzie.price@metro.co.uk.

Share your views in the comments below.

(Picture: SEAN GLADWELL/Moment/Getty)
Around one in 100 of us live with epilepsy (Picture: Sean Gladwell/Moment/Getty)

Emma Evens was just a child when she had her first seizure, but the 32-year-old admits it took her decades to come to terms with having a condition that few people truly understood.

Not only did she have to get used to never knowing when and if it might strike, but Emma says that dealing with other people’s fear, discrimination and ignorancealso had a huge impact on her.

‘It took me a long time to be comfortable with, even though epilepsy is something I’ve had since I was born,’ Emma tells Metro. ‘I used to have chronic episodes at school, where I would fall unconscious, before my body began to stiffen and then jerk, which can be scary for anyone watching.

‘The seizures got worse as a teenager and happened pretty frequently. I remember when I started secondary school that I was excited to make new friends, but people around me were scared.

‘I felt like I had to behave a certain way because I was seen as the girl that was always on the floor. I desperately wanted to be normal, but I felt so alone.’

For Sarah

Sarah Whiteley was a Metro columnist and much-loved member of the team (Picture: Sarah Whiteley)

Last year, on March 10, we lost our beloved colleague Sarah Whiteley. Sarah was a fantastic journalist; she was Metro’s parenting columnist and a valued member of our first-person and opinion desk.

Sarah died aged 39 from SUDEP – sudden unexpected death in epilepsy. It is thought that every year around 1,000 people die from causes related to epilepsy.

With support from Sarah’s family, Metro is fundraising for two very important charities: SUDEP Action and Epilepsy Action.

From March 10 to March 26, which marks Purple Day (epilepsy awareness day), we will be running a series of features and first-person pieces, raising awareness of epilepsy and SUDEP.

Sarah was so incredible at helping other people share their experiences; she was a born storyteller and we hope to do her proud with this series, while raising money in her memory.

Emma was born with epilepsy and experiences ‘tonic clonic’ seizures (Picture: Supplied)

When Emma left school and entered the workplace after college, she recalls that her struggles were far from over. Just months after training as a nursery assistant, she felt forced to resign. 

‘My colleagues and manager took me on thinking they were being inclusive, but then didn’t put enough measures in place to support me,’ she explains.

‘I’d often be left with young children on my own, which was dangerous for the kids because I could’ve had a seizure at any moment.’

Emma, who experiences ‘tonic clonic’ seizures – characterised by the stiffening and jerking of muscles followed by loss of consciousness – believes she has experienced discrimination by three different employers to date. 

Emma has suffered many injuries over the years due to her seizures (Picture: Supplied)

She’s been disciplined multiple times over ‘excessive’ sick leave, and says colleagues have avoided her out of fears she would have a seizure in front of them.  

‘When I was an apprentice, I was told by HR that I could only have three seizures a month – as if I was somehow in control,’ Emma recalls. ‘I tried to explain that I cannot control when I’m going to have a seizure, so I was put on a second disciplinary.

‘Eventually, my apprenticeship came to an end and I was let go. It was as if they weren’t listening to me as a person or willing to understand the way my epilepsy impacts me. Looking at me I’m a young, fit and healthy person, but there’s this hidden condition I live with.’

Epilepsy – the facts

Epilepsy affects an estimated 633,000 people in the UK – around one in every 100 people. One of the most common neurological conditions globally, 87 of us are diagnosed every day. 

It’s also one of the most common long-term conditions in childhood, impacting five young people in every secondary school, according to the Joint Epilepsy Council.

Research from the charity Young Epilepsy found 36% of young people and parents reported not getting the support they required for full participation in school life in the 2021-22 academic year. 

Meanwhile research carried out by Epilepsy Action found that two thirds of people living with the condition have experienced unequal treatment or discrimination at work.

A survey by Epilepsy Action revealed that almost nine out of 10 people with the condition felt the person carrying out their benefits assessment did not have an understanding or knowledge about epilepsy. 

Emma is just one of a number of people to report cases of disability discrimination in the workplace and the wider challenges that epilepsy can pose to employment prospects. Now an experienced executive assistant and champion of accessibility within the workplace, she urges companies to update their disability and inclusion policies.

With 42% of employers admitting in a survey by Epilepsy Action, that they would not hire someone with the condition, there’s a real ‘lack of knowledge of what actually needs to happen if someone has a seizure and the side-effects that often accompany the condition,’ according to Kasam Parker, CEO of the charity Voice for Epilepsy.

‘Employees should be able to explain to employers what impact it has on them and what adjustments they require,’ he adds.

Expert Kasam Parker says there is a lack of knowledge surrounding the condition (Picture: Supplied)

According to Professor Ley Sander, head of the Department of Clinical and Experimental Epilepsy at UCL Queen Square Institute of Neurology, one of the biggest challenges facing people with epilepsy is uncertainty.

‘Not knowing if there will be another seizure is always a big worry,’ he tells Metro. ‘Often, not knowing when the next seizure will be or not knowing what the future will bring can have a bigger impact than the seizure themselves.’ 

When Murray Goulder was diagnosed after having a seizure during a driving lesson, the relief was overwhelming.

Having spent weeks trying to find an explanation for the seizure, the then 17-year-old was reassured by his neurologist that with the correct anti-epileptic medication he could maintain a normal life. 

Murray says that when he first experienced seizures he thought it was a brain tumour (Picture: Supplied)

‘Until then, I was worried I might have a brain tumour,’ he remembers. ‘But when I discovered it was epilepsy, I was happy because it’s something I can live with. There’s still lots of things I can do.’

Murray, 44, currently works as a manager in Parcelforce Worldwide’s HR department and has been instrumental in establishing an equality and inclusion support group for staff to discuss their health conditions and disabilities. 

‘It’s about learning about your condition and if you’re not embarrassed to, providing that safety net so that people are able to talk to their colleagues and friends about their condition. It’s about demonstrating what good looks like.’

However, he says there’s still a huge lack of understanding surrounding the condition, which became evident when he needed to claim financial aid.

Magnetic resonance imaging - MRI - Photosensitive Epilepsy /  Seizures - Neurological Diseases
neurology, epilepsy, magnetic resonance imaging, mri, seizure, health (Credits: Getty Images)

After an assessment that he describes as ‘discriminatory’, the 44-year-old was refused Personal Independence Payment (PIP) in 2017 and embarked on a relentless battle to get his financial aid reinstated. 

‘The assessor claimed I was safe to use kitchen knives and cook on my own, even though medically I’m not able to,’ Murray explains. ‘I’ve already proven that I’ve got the condition and I had it proven by my neurologist and caregivers, but it was as if I was being told I had epilepsy one moment and then I didn’t the next.’

It took two years for Murray’s claim to be eventually upheld at an appeal tribunal in 2019. Then, the Department for Work and Pensions took away his payments again in March 2023, despite providing evidence of his seizures.

Fitted with a Subcutaneous EEG implant (SubQ) in December 2021, Murray discovered that the frequency of his seizures were far greater than he thought and used the findings in his claim. 

Patient entering Magnetic Resonance Imaging (MRI) scanner
We should be passing on the message that for the majority of people, epilepsy is not a problem – the problem is the way we perceive it’ (Picture: Getty Images)

‘The device has proven that I have more seizures than I notice,’ he explains. ‘But I’m still judged on a system that measures us against people with physical disabilities. We need a category that puts us in a neurological bracket.’

In response to Murray’s claims, a spokesperson for the Department of Work and Pensions (DWP) told Metro: ‘We support millions of people with health conditions and disabilities every year and our priority is that they receive a supportive, compassionate service.

‘All our disability assessors are qualified health professionals and PIP entitlement is assessed on the needs arising from a health condition or disability, rather than the condition itself. Anyone who disagrees with a decision has the right to a review.’

For Rebekah Smith, deputy CEO of Epilepsy Action, it is vital that people feel comfortable when speaking about epilepsy.

‘We should be passing on the message that for the majority of people, epilepsy is not a problem,’ she tells Metro.

‘The problem is the way that people perceive it, and it is crucial we continue to raise awareness around how we deal with and support those with the condition.’

The Epilepsy Society is calling for the NHS to provide free dental repairs to teeth damaged by seizures. Find out more about their Fix It 4 Free campaign here.

This article was originally published August 17, 2024

A woman has found herself torn as her younger partner has informed her he now wants to date someone his own age, leaving her heartbroken and in a difficult position

A woman was left speechless after discovering her husband’s infidelity, but his reaction to her finding out only made things worse

Louise Pearce's son Thomas
Thomas loved animals so we visited a different place each weekend (Picture: Louise Pearce)

I was watching TV to relax, having cleaned the entire house from top to bottom, when my phone rang. 

It had just passed midnight on the first day of February half term in 2024. Hours earlier, I had come home from our local hospital in Poole with our middle son, Charlie, leaving my husband Gary with our youngest, eight-year-old Thomas, while he had some tests.  

It was Gary on the other end of the phone, panicked: ‘Louise, you’ve got to come back. They’ve found something on the scan.’ 

My stomach lurched.  

My eldest, Josh, 23, looked after Charlie while I drove the half hour journey to the hospital, from our home in Bournemouth.  

I was terrified.  

It was January 2024 when I first took Thomas to the doctors – I noticed he had started speaking more slowly than usual. Everything he said was perfectly clear, it just took ages for him to get a sentence out.  

Our GP, however, wasn’t concerned. Thomas also had some trouble with his hearing so the doctor said it must be because his ears were blocked and affecting his speech. We put olive oil in them and took him to have the wax suctioned but there was no change.  

Thomas was getting increasingly frustrated. It didn’t make sense that our cheeky, bright, mini-Ed Sheeran, who could identify any country’s flag and loved being with his brothers or school friends, now couldn’t speak well. 

Three weeks after seeing the doctor I saw he was having trouble playing with his LEGO because his right hand was shaking.  

This, paired with his slow speech, worried me, so I rang 111. After answering their questions, we ended up being referred for an MRI scan. 

Louise Pearce, her husband and their sons
Over the next five months, whenever we could, we decided to take the advice we’d been given and ‘do nice things’ (Picture: Louise Pearce)

Fast forward two weeks, and more tests, when Gary called me from the hospital rushing me to get back for the results.  

It was the worst news.  

Thomas had a cruel disease that would gradually rob him of his speech, his ability to walk, eat and, ultimately, his life – he had malignant brain tumours in his basal ganglia, both thalami, the left temporal lobe, frontal lobe and upper brain stem.  

The doctor explained: ‘I won’t beat around the bush. It’s high grade, it’s aggressive. We’ll send the sample off to Great Ormond Street Hospital for further tests.’ 

We were completely shocked, in disbelief, numb even. I just wanted to get my little boy, who was waiting outside the room, and take him home. 

We told Thomas he had a lump in his head and that’s why his hand and speech had been affected. He didn’t really say much, he just accepted what we told him.  

But we had hope.  

Louise Pearce - my 9-year-old son died from a brain tumour
About 40 children a year in the UK are diagnosed with diffuse midline glioma (Picture: Louise Pearce)

There was no swelling around the mass, so it wasn’t urgent, we were told.  

We thought surgery might be possible, like with other cancers, and that a biopsy to identify genetic mutations might mean Thomas was eligible for a clinical trial. But unfortunately it was a ‘no’ on both counts.  

Two weeks after finding the brain tumour, when we received the initial biopsy results, the consultant said: ‘I’m only telling you this because I know you’ll Google it.

‘Thomas has a year at most. We can give him some radiotherapy, which may buy you a bit more time, but our advice is to do nice things while you can.’ 

The news was delivered so bluntly, that it stayed with me. 

Louise Pearce - my 9-year-old son died from a brain tumour
Thomas was so brave and we want people to remember him like that (Picture: Louise Pearce)

I understand that medical teams do this every day, but they’ve got to remember this is someone’s child and telling his family he’s going to die is really tough. We just wanted to do whatever we could to keep our little boy alive for an extra day or an extra hour. 

I sobbed silently in the passenger seat as Gary drove us home, while I tried to process it all. After that it was a whirlwind.

We wanted to understand what was happening and find out more, so we went on The Brain Tumour Charity website – it told us that about 40 children a year in the UK are diagnosed with diffuse midline glioma.

Only 10% survive for two years or more. Brain tumours are the biggest cancer killer of children and the under 40s.   

The Brain Tumour Charity

The Brain Tumour Charity is the world’s leading brain tumour charity and the largest dedicated funder of research into brain tumours globally.

To find out more about their work, head to www.thebraintumourcharity.org.

After the diagnosis, I took leave from my role as a mortgage advisor to be with Thomas while he had 30 rounds of radiotherapy at University College London every weekday for six weeks. We were able to come home at weekends, or have the family come to meet us.  

Over the next five months, whenever we could, we decided to take the advice we’d been given and ‘do nice things’.   

Thomas loved animals so we visited a different place each weekend: London Zoo, Sea Life, the Oceanarium in Bournemouth, Marwell Zoo, Paulton’s Park and, in June, we went to Paignton Zoo in Devon for a Family Day organised by The Brain Tumour Charity.  

From April onwards Thomas used a wheelchair as he got really tired but we were still able to go to Madame Tussauds, Tower Bridge, The London Eye, Center Parcs, Alton Towers, Butlins and Hamleys – which has a whole floor of LEGO.  

He loved Alton Towers. Since he was in a wheelchair, he was given a special pass to access each ride. He even got to hold a starfish at the aquarium there. 

Louise Pearce - my 9-year-old son died from a brain tumour
Thomas decided to set up a lemonade stand outside our house (Picture: Louise Pearce)

Thomas did the best he could under the circumstances, but it did upset him that he couldn’t eat and had to have a feeding tube. He couldn’t go to school much and really missed it, as well as his friends.  

But he never asked any questions about his tumour; we told him it was still there and he simply accepted that.  

He lost his hair and had to have a platelet transfusion in every chemo cycle. The first one caused anaphylactic shock, so he was terrified of it happening again. 

There were also positive memories. Thomas decided to set up a lemonade stand outside our house. He’d been inspired by something he’d seen on YouTube, so I put a notice out on our local community Facebook group asking passers-by to come and buy some lemonade.  

We were overwhelmed by the support – hundreds of people came by as customers. Thomas raised £1,000 to help the homeless and even help pay for one of our trips.  

He got featured in the local paper too, so people started recognising him, which made him feel famous – he loved that.  

Louise Pearce - my 9-year-old son died from a brain tumour
Thomas did the best he could under the circumstances (Picture: Louise Pearce)

In September 2024, Thomas fed the giraffes at Port Lympne Safari Park thanks to the charity Make-A-Wish UK. But he was complaining of back pain and looking back at the photos it was clear he wasn’t feeling well that day. 

His next MRI scan on 12 September showed the tumour had spread down his spine and brain stem. The hospital said there was nothing else they could do and stopped all treatment. During this time, Thomas was unable to do much.   

He lived for another nine weeks and then, with his pain under control, Thomas died peacefully on November 16, 2024. That’s all you can hope for.   

After all he’d been through Thomas didn’t want to be in hospital and, although it’s lovely, I wouldn’t have been happy in the local children’s hospice either. He wanted to be at home and that meant we could set him up in the lounge and his brothers could see him whenever they wanted to – with a care team from the hospital and Julia’s House hospice.  

Having the choice is so important. We were able to choose what we wanted and what was best for us. It comforts me that he was happy throughout it all. 

I think we were very lucky because not everyone receives this care. We can’t fault the NHS – the palliative care we had was excellent.  

It’s important to us to raise awareness of brain tumours in children, hoping that one day a cure is found and no other family has the heartbreak of losing a child. 

Thomas was so brave and we want people to remember him like that. 

Do you have a story you’d like to share? Get in touch by emailing jess.austin@metro.co.uk

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